BETHANY NORTON, MA
Clinical Research Program Manager
Bethany joined Dr. Michael Kruer’s laboratory in 2015 as Clinical Research Program Manager where she collaborates on study design and implementation. Her focus on enrollment and specimen collection has informed development of an online innovative consenting tool designed both to engage families who may not otherwise have the opportunity to participate in cerebral palsy gene discovery research and to increase participant understanding and information retention. Her work encompasses broad areas within the laboratory including literature reviews, identification of outcome measures, study design, study start-up and personnel training, grant preparation, and manuscript composition. Bethany collects and analyzes data, develops research protocols, tracking tools, data collection instruments, and works with other members of the lab to ensure effective and ever-improving data management systems. Familiar with regulatory guidelines, she secures IRB approvals and – alongside team members – works closely with IRB members and collaborating researchers to ensure organizational and community support for the lab’s pioneering approach to translational research. Bethany’s research interests include ethical considerations in genomic research; innovative consenting in genomic research; fetal, infant and child health; infant safe sleep; infant mortality; and women’s health. Her 12 years’ public health research experience includes 6 years in Sioux Falls, South Dakota as Project Manager and member of the Prenatal Alcohol and SIDS and Stillbirth (PASS) Network, a NICHD funded infant mortality research study. She was awarded a BA in Psychology and Spanish at University of Rochester and Master of Social Sciences and Social Intervention at Universidad Pablo de Olavide in Seville, Spain.